Psychological Non Epileptic Seizures
Northeast Regional Epilepsy Group

Pseudoseizures, the bias held by some health professionals and this really has to stop!

Warning: the content in this blog post may be upsetting and hurtful to the reader-it contains insulting and coarse language found on-line describing patients with PNES For a few months three of us have been working on a project examining how often PNES (and all the other names that this condition goes by) appears in the Internet and creating sort of tally.  The way we approached this search task was by entering...

With all the exceptional research being conducted on PNES/NEAD, is this seriously the article that was chosen to be highlighted by the Epilepsy Foundation of America (EFA) in their effort to address the PNES topic?

I remember like it was yesterday, while still a fellow in training, an attending doctor said: Lorna, when you start publishing in the future, make sure you don’t just publish noise. When I asked what he meant by that, he explained that too many articles published in scientific journals are just noise, static like on the radio, and that they have little or no value. This week, I ran across an article on PNES that...

Psychogenic non-epileptic seizures was prominently featured at the American Epilepsy Society Meeting (AES) in Seattle, WA in December 2014

The condition of psychogenic non-epileptic seizures has for a very long time been a bit of an orphan in the health field.  It can take up to seven years on average to receive the right diagnosis and even once it is made, too often the patients experience a “ping pong effect” of being referred from neurology to psychiatry/psychology only to be sent back to neurology and back and forth.  There are so many things...

Creating proper treatment programs for psychogenic non-epileptic seizures in the US

In June and July of this year I blogged on how poor standard of care is in the US for many patients diagnosed with psychogenic non-epileptic seizures. However, this month I am happy to write about a positive experience I had at Overlook Hospital of Summit, New Jersey. In the summer, I blogged about deficient care for PNES in neurology and mental health settings in the US. First, how the PNES patient management in...

A sad truth: Standard care of psychogenic non epileptic seizures in the US is deficient and how to make this better

There are three major weaknesses in the standard care of PNES: 1) It takes on average 7 years to correctly diagnose the condition; 2) Psychiatry and psychology are woefully ignorant about psychogenic non epileptic seizures (PNES) and unprepared to treat despite PNES being a psychological condition; 3) Although inpatient epilepsy monitoring centers throughout the US evaluate and diagnose up to 20-30% of their...