Psychological Non Epileptic Seizures
Northeast Regional Epilepsy Group

New International Research Project for persons living with PNES (NEAD)

Six months ago, Prof. Markus Reuber and one of his doctoral graduate students launched a research study in which patients diagnosed with PNES and epilepsy were invited to participate in a writing experience that tested whether this helped them feel more in control of their condition and reduce their seizures and improve their quality of life. Now, Dr. Catherine Robson and Prof. Markus Reuber are launching a second...

With all the exceptional research being conducted on PNES/NEAD, is this seriously the article that was chosen to be highlighted by the Epilepsy Foundation of America (EFA) in their effort to address the PNES topic?

I remember like it was yesterday, while still a fellow in training, an attending doctor said: Lorna, when you start publishing in the future, make sure you don’t just publish noise. When I asked what he meant by that, he explained that too many articles published in scientific journals are just noise, static like on the radio, and that they have little or no value. This week, I ran across an article on PNES that...

Psychogenic non-epileptic seizures: GC recommends that you listen to yourself

This blog post was written by a young woman who was diagnosed with psychogenic seizures (PNES) seven years ago.  She has coursed a hard yet enriching road that eventually helped her overcome her PNES.  Not only has she overcome the condition, she is now helping others to do the same.  we thank her for taking the time to write this message which she hopes will be helpful to many of you. About 7 years ago I was...

Psychogenic non epileptic seizures (PNES) can disrupt life in a multitude of ways

Some think that because psychogenic non epileptic seizures are “psychological” that they somehow have less of an impact on life. But for many who have PNES, it can feel like a prison (see picture of handcuffs). PNES has some very real emotional and physical effects and the potential to affect the finances and independence of the patient in a multitude of ways. The unexpected nature of the psychogenic events can...