Psychological Non Epileptic Seizures
Northeast Regional Epilepsy Group

Riding 40 miles for seizures #2

A year ago, riding in a bike marathon seemed like an impossible challenge since I had only ever ridden my bicycle recreationally, had never done anything marathon-like ever before and had not even been an especially athletic child or youth growing up.  Now, less than a year later, bike riding through the Northeast of the US to raise funds for the Epilepsy Free not-for-profit and to raise awareness about seizure...

Recommendations for books having to do with psychogenic non-epileptic seizures as holiday gifts 2016

My position has always been that the gift of knowledge is maybe one of the most wonderful gifts we can give to others.  That’s why I so value the work teachers do.  I am still in awe of how children enter school as illiterates and in just a few years are taught how to make sense of symbols (i.e. letters) ending up being able to read whole words, passages and even books, and able to write persuasive,...

Psychogenic non-epileptic seizures (PNES) awareness has taken off in 2014: new book on PNES, PNES/ non-epileptic attack disorder awareness colors, PNES conference hosted by NEREG

The year 2014 has been very important for the raising of awareness and education about psychogenic non-epileptic seizure (PNES).  On January, Psychogenic Non-epileptic Seizures: A Guide was published and has now sold almost 400 copies.  Some patients and family members decided to share this book with their neurologists and mental health professionals and wrote me to say that the health care professionals have...

It has a Name

KT has written this powerful poem about her struggle with her mysterious illness-psychogenic non-epileptic seizures (PNES) and the importance of finally being told what it was exactly that she has been suffering.  She has generously agreed to share with us and we thank her for that. Friends-close friends from near and far decide it is time No explanation needed they see it written on my face Get in the car...

Why do Psychogenic non-epileptic seizures (PNES) become chronic for so many?

For the past year or so I have had a survey up on www.nonepilepticseizures.com homepage.  It asks: How long have you been suffering non-epileptic episodes? 109 responses were received.  Note that this is not a scientific survey that is based on those who wished to respond. Over 40% reported that PNES has been part of their life for over 5 years!  Thirty-seven percent reported that PNES has been part of their life...

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