psychogenic seizures

Please join me in celebrating the 2021 winners of the Lorna Myers PNES scholarship!

1 Comment / 2021, News / By

This year, the Epilepsy Alliance of America awarded eight fantastic women scholarships to assist them in pursuing their education. The main criteria for this award is that the applicant must have a diagnosis of psychogenic non-epileptic seizures (PNES) and can show that he/she is planning on using these funds to further his/her education. Why was …

Please join me in celebrating the 2021 winners of the Lorna Myers PNES scholarship! Read More »

Psychogenic non-epileptic seizures (PNES)/ functional seizure (FS) conference 2021!  It is back on-bigger and better

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For six years straight, the Northeast Regional Epilepsy Group (NEREG), hosted an annual PNES conference for patients, caregivers, and in the later years, for health professionals too. Our last conference was held on 2019 and then, as we all know, the world ground to a halt due to the 2020 pandemic. Although we did not …

Psychogenic non-epileptic seizures (PNES)/ functional seizure (FS) conference 2021!  It is back on-bigger and better Read More »

Recommendations for summer reading: a variety of choices about and by persons living with Psychogenic non-epileptic seizures (PNES)

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Psychoeducation: refers to some form of intervention (lecture, support group meeting or published materials) that aims to educate the audience members/readers about a specific health condition, provides coping suggestions and informs about treatment options.  Usually, psychoeducation is provided by health professionals but not necessarily; patients who have educated themselves about their health issues can prove …

Recommendations for summer reading: a variety of choices about and by persons living with Psychogenic non-epileptic seizures (PNES) Read More »

As someone who has PNES, what should I know about the COVID-19 vaccines?

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If we can say anything for sure about COVID-19 is that there is still a lot that we do not know. Making matters worse, at times experts have communicated confusing and contradictory information to the public. One of the clearest examples of these confounding messages can be found in the advice provided regarding mask wearing.  …

As someone who has PNES, what should I know about the COVID-19 vaccines? Read More »

The debate on what to call psychogenic non-epileptic seizures (PNES), non-epileptic attach disorder (NEAD), dissociative seizures, functional seizures, etc. continues

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This feature article was just published by the International League Against Epilepsy (ILAE) and summarizes meetings that took place last year. https://www.newswise.com/articles/what-should-we-call-psychogenic-non-epileptic-seizures   Note: I will continue to call PNES by this name below since we do not have a better term yet. Why is this important what we call this disorder, you might ask? …

The debate on what to call psychogenic non-epileptic seizures (PNES), non-epileptic attach disorder (NEAD), dissociative seizures, functional seizures, etc. continues Read More »

What if a patient has psychogenic non-epileptic seizures (PNES) but does not report any significant psychological trauma?

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It is important for mental health professionals to be cognizant of this because these patients exist and are encountered in psychotherapists’ offices with certain regularity. For decades if not centuries (if we look back to Pierre Janet and Sigmund Freud) it has been understood that psychological trauma is an important risk factor in the development …

What if a patient has psychogenic non-epileptic seizures (PNES) but does not report any significant psychological trauma? Read More »

Shame and Psychogenic non-epileptic seizures (PNES): research topic?

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A few weeks ago, I was contacted by one of the leaders in the field of research of Psychogenic non-epileptic seizures (PNES); he proposed a project to several professionals in the field of PNES focusing on a topic that is often overlooked not only in PNES but in many other conditions and a variety of …

Shame and Psychogenic non-epileptic seizures (PNES): research topic? Read More »

Studying Emotion, Relationships, and Psychogenic Non-epileptic Seizures (PNES) at Arizona State University

Leave a Comment / 2020, News / By

This month’s blog post comes to us from sunny Arizona, more specifically, Dayana Villarreal, Graduate Student, Arizona State University. Below, you are invited to read about her current research project on PNES. She hopes you may decide to take an online survey that will be used to better understand the inner workings of PNES.   …

Studying Emotion, Relationships, and Psychogenic Non-epileptic Seizures (PNES) at Arizona State University Read More »

You have been told you have alexithymia: Now, what? (Post for patients)

1 Comment / 2020, News / By

Let’s first answer: What is alexithymia? Basically, it means, not having words for emotions (a=not having, lexi=word, thymia=emotion) or in other words, having a hard time identifying and describing feelings.  In psychogenic non-epileptic seizures (PNES), it is quite common to have some degree of alexithymia.  By the way, alexithymia can also occur in individuals who …

You have been told you have alexithymia: Now, what? (Post for patients) Read More »

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