Psychological Non Epileptic Seizures
Northeast Regional Epilepsy Group

The good news is that you don’t have epilepsy, instead you have something called PNES

This blog’s title depicts a common way in which many doctors explain the diagnosis of Psychogenic non-epileptic seizures (PNES) to patients who are newly diagnosed with this disorder. I suspect this presentation is meant to suggest to the patient that having PNES is less terrible, dangerous, maybe potentially intractable, etc. than having epilepsy. However, in this year’s American Epilepsy Society meeting there...

A fantastic new book on psychogenic non-epileptic seizures “In our words” and why some health professionals should read it

This blog post has two parts to it. The first part will talk about a wonderful new book called “In Our Words” edited by Markus Reuber, Gregg Rawlings and Steven C. Schachter and which features testimonials of those living with PNES from around the world.  It can be pre-ordered on Amazon with official release date of June 26,...

Why is scientific research in psychogenic non-epileptic seizures (PNES) so important and if you see that a study has opened up, why you should seriously consider applying to see if you qualify

A researcher of the brain You may not believe this if you are currently living with PNES and encountering a lot of the day to day challenges that come with it, but the panorama for PNES is actually improving (I know it can feel for some like too slow or not at all where you live, but remember, there is hope).  And one of the key ways in which we continue moving forward in making more improvements for those living...

Recommendations for books having to do with psychogenic non-epileptic seizures as holiday gifts 2016

My position has always been that the gift of knowledge is maybe one of the most wonderful gifts we can give to others.  That’s why I so value the work teachers do.  I am still in awe of how children enter school as illiterates and in just a few years are taught how to make sense of symbols (i.e. letters) ending up being able to read whole words, passages and even books, and able to write persuasive,...

Book recommendation: Guises of Desire is the beautifully told story of one of the best known patients with a psychogenic and dissociative disorder

The time and place: Vienna, Austria in the 1800’s.  The main character of the story is real: Bertha Pappenheim (AKA Anna O). In Guises of Desire, the author, Hilda Reilly, recounts Bertha’s intense years living with these psychogenic symptoms using a wonderful combination of solid research and imagination.  Ms. Reilly descriptions of Bertha’s variety of psychogenic symptoms including a persistent cough,...

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