Psychological Non Epileptic Seizures
Northeast Regional Epilepsy Group

Why is scientific research in psychogenic non-epileptic seizures (PNES) so important and if you see that a study has opened up, why you should seriously consider applying to see if you qualify

A researcher of the brain You may not believe this if you are currently living with PNES and encountering a lot of the day to day challenges that come with it, but the panorama for PNES is actually improving (I know it can feel for some like too slow or not at all where you live, but remember, there is hope).  And one of the key ways in which we continue moving forward in making more improvements for those living...

Recommendations for books having to do with psychogenic non-epileptic seizures as holiday gifts 2016

My position has always been that the gift of knowledge is maybe one of the most wonderful gifts we can give to others.  That’s why I so value the work teachers do.  I am still in awe of how children enter school as illiterates and in just a few years are taught how to make sense of symbols (i.e. letters) ending up being able to read whole words, passages and even books, and able to write persuasive,...

Book recommendation: Guises of Desire is the beautifully told story of one of the best known patients with a psychogenic and dissociative disorder

The time and place: Vienna, Austria in the 1800’s.  The main character of the story is real: Bertha Pappenheim (AKA Anna O). In Guises of Desire, the author, Hilda Reilly, recounts Bertha’s intense years living with these psychogenic symptoms using a wonderful combination of solid research and imagination.  Ms. Reilly descriptions of Bertha’s variety of psychogenic symptoms including a persistent cough,...

Why do Psychogenic non-epileptic seizures (PNES) become chronic for so many?

For the past year or so I have had a survey up on www.nonepilepticseizures.com homepage.  It asks: How long have you been suffering non-epileptic episodes? 109 responses were received.  Note that this is not a scientific survey that is based on those who wished to respond. Over 40% reported that PNES has been part of their life for over 5 years!  Thirty-seven percent reported that PNES has been part of their life...

Treating Psychogenic non-epileptic seizures: Only half of US psychiatrists accept payment through health insurance

An article came out earlier this week in USA Today that underscored a very serious problem that persons with psychogenic non epileptic seizures (and other mental health conditions) face.  Only half of psychiatrists accept insurance which means that if you need treatment you need to be prepared to pay large out-of-pocket fees. This is not news for anyone who has tried to find a psychiatrist for a patient (I run into...