Psychological Non Epileptic Seizures
Northeast Regional Epilepsy Group

Pseudoseizures, the bias held by some health professionals and this really has to stop!

Warning: the content in this blog post may be upsetting and hurtful to the reader-it contains insulting and coarse language found on-line describing patients with PNES For a few months three of us have been working on a project examining how often PNES (and all the other names that this condition goes by) appears in the Internet and creating sort of tally.  The way we approached this search task was by entering...

With all the exceptional research being conducted on PNES/NEAD, is this seriously the article that was chosen to be highlighted by the Epilepsy Foundation of America (EFA) in their effort to address the PNES topic?

I remember like it was yesterday, while still a fellow in training, an attending doctor said: Lorna, when you start publishing in the future, make sure you don’t just publish noise. When I asked what he meant by that, he explained that too many articles published in scientific journals are just noise, static like on the radio, and that they have little or no value. This week, I ran across an article on PNES that...

Challenges in the management of Psychogenic seizures: Are we playing a role in this?

This weekend, I was reading a paper by Dr. Gaston Baslet and his colleagues (Treatment of Psychogenic non-epileptic seizures: Updated review and findings from our mindfulness-based intervention case series, 2014 Clinical EEG and Neuroscience).  On page 9 the authors discuss something that was not the main topic of the paper, but that struck me as worthy of being highlighted: Challenges in the management of...

Health Professionals Need to become educated about Psychogenic seizures (PNES)

Recently I read a couple of comments about psychogenic seizures on an epilepsy professional Forum and was thoroughly disappointed and irritated to say the least.   Although the tone of the comments was essentially professional and apparently trying to be helpful, I was taken aback by how dismissively the PNES patient was spoken of by these professionals who are the front line health providers, perhaps some of the...

Psychogenic non-epileptic seizures: GC recommends that you listen to yourself

This blog post was written by a young woman who was diagnosed with psychogenic seizures (PNES) seven years ago.  She has coursed a hard yet enriching road that eventually helped her overcome her PNES.  Not only has she overcome the condition, she is now helping others to do the same.  we thank her for taking the time to write this message which she hopes will be helpful to many of you. About 7 years ago I was...

« Previous Entries