Psychological Non Epileptic Seizures
Northeast Regional Epilepsy Group

Pseudoseizures, the bias held by some health professionals and this really has to stop!

Warning: the content in this blog post may be upsetting and hurtful to the reader-it contains insulting and coarse language found on-line describing patients with PNES For a few months three of us have been working on a project examining how often PNES (and all the other names that this condition goes by) appears in the Internet and creating sort of tally.  The way we approached this search task was by entering...

OF SCHOOL AND SEIZURES, PART 2

From time to time, I invite persons who have experience with PNES and who have useful information to share with others, to post on this blog.  Author of the wonderful book “View From the Floor: Non-epileptic seizures: A patient’s perspective”, Kate Berger, is sharing her knowledge and essential tips on how to navigate the school system when you are living with PNES.  I invite to read on…. These posts are...

View from the Floor- Psychogenic non-epileptic seizures: A Patient’s Perspective

I absolutely love this book! View from the Floor is such a delightful book that even after reading it 2 times, I still find it shakes me with its honesty and its superb writing style.  Kate Berger speaks in a clear and strong voice throughout and shares generously with the reader. If you have ever wondered what it is like to live with psychogenic seizures: when they first start, to what it is like to interact with...

What are a lot of epilepsy centers in the US doing for their patients once they diagnose them with psychogenic non-epileptic seizures (PNES)?

 This won’t be a surprise to many patients who have been diagnosed with PNES but some of you may be astonished to read:  Very little if anything. Psychogenic non-epileptic seizures can go misdiagnosed for an average of 7.2 years.1 In an attempt to remedy this devastating delay, the National Association of Epilepsy Centers-NAEC has established the following guidelines: a) When a patients seizures have not been...

Why do children have psychogenic seizures (PNES)? Is it because their parents are too nice to them?

In the last couple of weeks, an article started to appear in different social media outlets in which a neurologist was quoted as saying that an important contributing factor in functional illnesses (including seizures and paralysis) in children is that their parents are showering the children with “too much love and attention.” ...

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