Psychological Non Epileptic Seizures
Northeast Regional Epilepsy Group

Invited poet-Brittney “The Mourning Light”

Several times a year, this blog invites writers who live with PNES to share their writings.  This month, we have a moving poem submitted by Brittney. My name is Brittney, I’m 30, a member of the PNES support group, and I cannot work due to multiple conditions. I wrote the poem below in July when I was in patient at a mental health hospital where I had 3 spells in 10 days. It was my first stay at such a place...

Recently, I put out an invitation to persons living with PNES to submit writing samples (poems, write-ups, personal stories, etc).  The purpose of opening up the blog like this is to give a voice to persons living with PNES on a platform that is read in the US and abroad and that will reach others who are feeling alone with this diagnosis.  Olivia quickly contacted me and sent this write-up which she and I hope...

Riding 40 miles for seizures #2

A year ago, riding in a bike marathon seemed like an impossible challenge since I had only ever ridden my bicycle recreationally, had never done anything marathon-like ever before and had not even been an especially athletic child or youth growing up.  Now, less than a year later, bike riding through the Northeast of the US to raise funds for the Epilepsy Free not-for-profit and to raise awareness about seizure...

New Publication examines how psychogenic non-epileptic seizures (PNES or NEAD) are represented on the Internet.

Many health professionals still hold misconceptions regarding PNES itself. Many still believe that the psychogenic episodes are somehow voluntary in nature. Others are uncertain about prognosis and when it comes to treatment many tend to offer a knee-jerk suggestion of CBT (cognitive behavior therapy) without taking into account that a substantial number of mental health professionals may be trained in CBT but may...

New International Research Project for persons living with PNES (NEAD)

Six months ago, Prof. Markus Reuber and one of his doctoral graduate students launched a research study in which patients diagnosed with PNES and epilepsy were invited to participate in a writing experience that tested whether this helped them feel more in control of their condition and reduce their seizures and improve their quality of life. Now, Dr. Catherine Robson and Prof. Markus Reuber are launching a second...

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