Psychological Non Epileptic Seizures
Northeast Regional Epilepsy Group

Drumroll…. Fifth Annual Conference on Psychogenic non-epileptic seizures (PNES) will be taking place this October!

Five years ago, at the Northeast Regional Epilepsy Group, we took a leap into the unknown and organized our first ever PNES conference for patient and caregivers. Just days before the conference was to take place, we were understandably nervous.  We wondered if anyone would even show up, if there was any interest in the topic, and if this would be the first and last PNES conference. Fast forward now to five years...

A fantastic new book on psychogenic non-epileptic seizures “In our words” and why some health professionals should read it

This blog post has two parts to it. The first part will talk about a wonderful new book called “In Our Words” edited by Markus Reuber, Gregg Rawlings and Steven C. Schachter and which features testimonials of those living with PNES from around the world.  It can be pre-ordered on Amazon with official release date of June 26,...

Raising PNES awareness

Every so often, I have an invited writer contribute something relevant to PNES on this blog.  Recently, I heard from John Dougherty, author of “Lowering the Shield: Overcoming Psychogenic Seizures” about a disappointing event in his continuing efforts to improve the lives of those living with PNES.  I agreed with him that it merits being shared with the PNES community and may help us, as a community,...

A firefighter diagnosed with psychogenic non-epileptic seizures (PNES) and post-traumatic stress disorder (PTSD) was just featured in a news article

Yesterday, an article in print and video format came out in which a Canadian firefighter describes the long road he traveled with his diagnosis of PNES. In it, he explains how he started to have problems after experiencing three sequential traumatic experiences. These, first led to developing post-traumatic stress disorder, and then progressed into PNES (a health condition that is woefully unknown to most).  His...

Dis-sociated: A documentary about psychogenic non-epileptic seizures

Dis-sociated- is a documentary by Clea Martin Vargas Dis-sociated will be a feature length documentary about Dissociative Seizures, also known as Non-epileptic Attack Disorder (NEAD) or Psychogenic Non-Epileptic Seizures (PNES). Clea decided to make this documentary after witnessing first-hand the tremendous difficulties her friend faced with her diagnosis of PNES (or dissociative seizures), or what...

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