non epileptic attack disorder

What term do YOU prefer to use when naming your health condition (AKA psychogenic non-epileptic seizures) or talking about your symptoms with others?

Leave a Comment / 2019, News / By

Late last year, we posted a survey on the homepage of www.nonepilepticseizures.com that addresses the age-old question: what should we call these particular non-epileptic episodes?  The difference in this blog post is that we will hear from non-professional survey voters and not just the researchers. If you have followed this blog, you might recall that …

What term do YOU prefer to use when naming your health condition (AKA psychogenic non-epileptic seizures) or talking about your symptoms with others? Read More »

“‘dis-sociated’ – The first ever feature documentary on PNES

Leave a Comment / 2019, News / By

I’m Clea, the director, producer and editor of dis-sociated, the first feature-length documentary about Dissociative Seizures which is now available to watch on YouTube: I was inspired to create this documentary after my friend developed mysterious absence-like seizures, which doctors were unable to explain or prevent. Once my friend finally received a diagnosis, her life …

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The International League Against Epilepsy (ILAE) features an article about psychogenic non-epileptic seizures (PNES)

2 Comments / 2019, News / By

There is one thing we can be sure of: if we are going to be successful in disseminating information and educating the public (professional and general) about PNES, we need to make sure it is reported on and written about in as many publications and venues as possible. So, imagine my satisfaction in reading and …

The International League Against Epilepsy (ILAE) features an article about psychogenic non-epileptic seizures (PNES) Read More »

The good news is that you don’t have epilepsy, instead you have something called PNES

1 Comment / 2018, News / By

This blog’s title depicts a common way in which many doctors explain the diagnosis of Psychogenic non-epileptic seizures (PNES) to patients who are newly diagnosed with this disorder. I suspect this presentation is meant to suggest to the patient that having PNES is less terrible, dangerous, maybe potentially intractable, etc. than having epilepsy. However, in …

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Psychogenic non-epileptic seizures (PNES) on YouTube®

1 Comment / 2018, News / By

Over the last few months, we have been asking those who visit our website: www.nonepilepticseizures.com to respond to a survey.  The question asked was, On YouTube®, which videos on PNES do you find most helpful? The options to choose from included: Videos showing a seizure, educational videos by doctors, educational videos by patients, I don’t …

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A fantastic new book on psychogenic non-epileptic seizures “In our words” and why some health professionals should read it

3 Comments / 2018, News / By

This blog post has two parts to it. The first part will talk about a wonderful new book called “In Our Words” edited by Markus Reuber, Gregg Rawlings and Steven C. Schachter and which features testimonials of those living with PNES from around the world.  It can be pre-ordered on Amazon with official release date …

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Raising PNES awareness

1 Comment / 2018, News / By

Every so often, I have an invited writer contribute something relevant to PNES on this blog.  Recently, I heard from John Dougherty, author of “Lowering the Shield: Overcoming Psychogenic Seizures” about a disappointing event in his continuing efforts to improve the lives of those living with PNES.  I agreed with him that it merits being …

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A firefighter diagnosed with psychogenic non-epileptic seizures (PNES) and post-traumatic stress disorder (PTSD) was just featured in a news article

1 Comment / 2018, News / By

Yesterday, an article in print and video format came out in which a Canadian firefighter describes the long road he traveled with his diagnosis of PNES. In it, he explains how he started to have problems after experiencing three sequential traumatic experiences. These, first led to developing post-traumatic stress disorder, and then progressed into PNES …

A firefighter diagnosed with psychogenic non-epileptic seizures (PNES) and post-traumatic stress disorder (PTSD) was just featured in a news article Read More »

Dis-sociated: A documentary about psychogenic non-epileptic seizures

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Dis-sociated- is a documentary by Clea Martin Vargas Dis-sociated will be a feature length documentary about Dissociative Seizures, also known as Non-epileptic Attack Disorder (NEAD) or Psychogenic Non-Epileptic Seizures (PNES). Clea decided to make this documentary after witnessing first-hand the tremendous difficulties her friend faced with her diagnosis of PNES (or dissociative seizures), or what …

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Why is scientific research in psychogenic non-epileptic seizures (PNES) so important and if you see that a study has opened up, why you should seriously consider applying to see if you qualify

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You may not believe this if you are currently living with PNES and encountering a lot of the day to day challenges that come with it, but the panorama for PNES is actually improving (I know it can feel for some like too slow or not at all where you live, but remember, there is …

Why is scientific research in psychogenic non-epileptic seizures (PNES) so important and if you see that a study has opened up, why you should seriously consider applying to see if you qualify Read More »

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