Psychological Non Epileptic Seizures
Northeast Regional Epilepsy Group

Why is scientific research in psychogenic non-epileptic seizures (PNES) so important and if you see that a study has opened up, why you should seriously consider applying to see if you qualify

A researcher of the brain You may not believe this if you are currently living with PNES and encountering a lot of the day to day challenges that come with it, but the panorama for PNES is actually improving (I know it can feel for some like too slow or not at all where you live, but remember, there is hope).  And one of the key ways in which we continue moving forward in making more improvements for those living...

Recommendations for books having to do with psychogenic non-epileptic seizures as holiday gifts 2016

My position has always been that the gift of knowledge is maybe one of the most wonderful gifts we can give to others.  That’s why I so value the work teachers do.  I am still in awe of how children enter school as illiterates and in just a few years are taught how to make sense of symbols (i.e. letters) ending up being able to read whole words, passages and even books, and able to write persuasive,...

What do those diagnosed with psychogenic non-epileptic seizures receive along with the diagnosis of PNES when they are discharged?

For many it may have taken months to years to reach the point of lying in the hospital bed hearing the words: you don’t have “epilepsy,” you have something we call “psychogenic non-epileptic seizures” or “non-epileptic attack disorder.”  Getting here may have involved being seen by more than one doctor, receiving all sorts of other diagnoses (e.g. epilepsy), taking medications that did nothing to...

A Bike-a-thon to raise funds for Epilepsy Free which grants scholarships to persons with epilepsy and psychogenic non-epileptic seizures (PNES or NEAD)

When I was a kid, I was not especially athletic. Rather, I was more on the bookish side of things. In fact, I am a bit ashamed of admitting but on more than one occasion, I convinced my mother to obtain a medical note for me so that I would be allowed to not participate in gym class! But, we can all change! Over the last 9 years, I have worked out pretty steadily with my personal trainer, Renata Joy, twice a week....