mindfulness

You have been told you have alexithymia: Now, what? (Post for patients)

Let’s first answer: What is alexithymia? Basically, it means, not having words for emotions (a=not having, lexi=word, thymia=emotion) or in other words, having a hard time identifying and describing feelings.  In psychogenic non-epileptic seizures (PNES), it is quite common to have some degree of alexithymia.  By the way, alexithymia can also occur in individuals who …

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Why is scientific research in psychogenic non-epileptic seizures (PNES) so important and if you see that a study has opened up, why you should seriously consider applying to see if you qualify

You may not believe this if you are currently living with PNES and encountering a lot of the day to day challenges that come with it, but the panorama for PNES is actually improving (I know it can feel for some like too slow or not at all where you live, but remember, there is …

Why is scientific research in psychogenic non-epileptic seizures (PNES) so important and if you see that a study has opened up, why you should seriously consider applying to see if you qualify Read More »

Creating proper treatment programs for psychogenic non-epileptic seizures in the US

In June and July of this year I blogged on how poor standard of care is in the US for many patients diagnosed with psychogenic non-epileptic seizures. However, this month I am happy to write about a positive experience I had at Overlook Hospital of Summit, New Jersey. In the summer, I blogged about deficient …

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