Psychological Non Epileptic Seizures
Northeast Regional Epilepsy Group

What term do YOU prefer to use when naming your health condition (AKA psychogenic non-epileptic seizures) or talking about your symptoms with others?

Late last year, we posted a survey on the homepage of www.nonepilepticseizures.com that addresses the age-old question: what should we call these particular non-epileptic episodes?  The difference in this blog post is that we will hear from non-professional survey voters and not just the researchers. If you have followed this blog, you might recall that in the past, I have written about what professionals think...

“‘dis-sociated’ – The first ever feature documentary on PNES

I’m Clea, the director, producer and editor of dis-sociated, the first feature-length documentary about Dissociative Seizures which is now available to watch on YouTube: I was inspired to create this documentary after my friend developed mysterious absence-like seizures, which doctors were unable to explain or prevent. Once my friend finally received a diagnosis, her life had fallen apart due to her seizures. She...

New article compares patients with psychogenic non-epileptic seizures (PNES) to patients with intractable partial epilepsy on trauma, somatization and dissociation

This month, several colleagues at the Northeast Regional Epilepsy Group published a new article: “Psychological trauma, somatization, dissociation, and psychiatric comorbidities in patients with psychogenic nonepileptic seizures compared with those in patients with intractable partial epilepsy.” The initial aim of the project was to better understand psychological trauma in PNES and in persons with epilepsy...

Are psychogenic non-epileptic seizures (PNES) the same in men and women?

In 2017, we set about trying to answer a question that had been on my mind for a few years. The query was whether women and men with PNES were the same in all respects or different, and if they were different, in what ways. The reason answering this question is important is because better understanding differences in the general PNES classification can help clinicians know better what factors to keep an eye open...

Drumroll…. Fifth Annual Conference on Psychogenic non-epileptic seizures (PNES) will be taking place this October!

Five years ago, at the Northeast Regional Epilepsy Group, we took a leap into the unknown and organized our first ever PNES conference for patient and caregivers. Just days before the conference was to take place, we were understandably nervous.  We wondered if anyone would even show up, if there was any interest in the topic, and if this would be the first and last PNES conference. Fast forward now to five years...

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