Psychological Non Epileptic Seizures
Northeast Regional Epilepsy Group
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Recently, I put out an invitation to persons living with PNES to submit writing samples (poems, write-ups, personal stories, etc).  The purpose of opening up the blog like this is to give a voice to persons living with PNES on a platform that is read in the US and abroad and that will reach others who are feeling alone with this diagnosis.  Olivia quickly contacted me and sent this write-up which she and I hope...

Why is scientific research in psychogenic non-epileptic seizures (PNES) so important and if you see that a study has opened up, why you should seriously consider applying to see if you qualify

A researcher of the brain You may not believe this if you are currently living with PNES and encountering a lot of the day to day challenges that come with it, but the panorama for PNES is actually improving (I know it can feel for some like too slow or not at all where you live, but remember, there is hope).  And one of the key ways in which we continue moving forward in making more improvements for those living...

Prolonged exposure therapy for the treatment of patients diagnosed with psychogenic non-epileptic seizures (PNES) and post-traumatic stress disorder (PTSD)

We’d be hard pressed to find a clinician or researcher who doesn’t agree that the proper treatment for a confirmed diagnosis of psychogenic non-epileptic seizures (PNES) or non-epileptic attack disorder (NEAD-as it is called in the UK) is some form of psychotherapy.  Although, we’ve known this for decades, we’re still sorely uncertain as to which psychotherapeutic treatment modalities are not just most...

Riding 40 miles for seizures #2

A year ago, riding in a bike marathon seemed like an impossible challenge since I had only ever ridden my bicycle recreationally, had never done anything marathon-like ever before and had not even been an especially athletic child or youth growing up.  Now, less than a year later, bike riding through the Northeast of the US to raise funds for the Epilepsy Free not-for-profit and to raise awareness about seizure...

Recommendations for books having to do with psychogenic non-epileptic seizures as holiday gifts 2016

My position has always been that the gift of knowledge is maybe one of the most wonderful gifts we can give to others.  That’s why I so value the work teachers do.  I am still in awe of how children enter school as illiterates and in just a few years are taught how to make sense of symbols (i.e. letters) ending up being able to read whole words, passages and even books, and able to write persuasive,...

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