Psychological Non Epileptic Seizures
Northeast Regional Epilepsy Group

Fourth annual psychogenic non-epileptic seizures conference in New Jersey

This year we had the pleasure of holding what has now become a tradition: our annual conference on psychogenic non-epileptic seizures (PNES)—our fourth annual conference! Some things were new this year though. To begin with, we moved our conference location from Mahwah, NJ to Morristown, NJ, where the Morristown Medical Center generously offered to host our event.  Different than other years, we were not in...

Functional Neurological Disorders (FND) Conference in Scotland, 2017

Early in September, I had the pleasure of attending a very exciting conference in Edinburgh, Scotland. The conference was historic and groundbreaking in many ways, not least of which was that the last International FND had been held a total of SEVEN years before! First question to tackle before we move forward is: What are Functional Neurological Disorders? And why are we talking about them when this blog features...

Invited poet-Brittney “The Mourning Light”

Several times a year, this blog invites writers who live with PNES to share their writings.  This month, we have a moving poem submitted by Brittney. My name is Brittney, I’m 30, a member of the PNES support group, and I cannot work due to multiple conditions. I wrote the poem below in July when I was in patient at a mental health hospital where I had 3 spells in 10 days. It was my first stay at such a place...

Recently, I put out an invitation to persons living with PNES to submit writing samples (poems, write-ups, personal stories, etc).  The purpose of opening up the blog like this is to give a voice to persons living with PNES on a platform that is read in the US and abroad and that will reach others who are feeling alone with this diagnosis.  Olivia quickly contacted me and sent this write-up which she and I hope...

Why is scientific research in psychogenic non-epileptic seizures (PNES) so important and if you see that a study has opened up, why you should seriously consider applying to see if you qualify

A researcher of the brain You may not believe this if you are currently living with PNES and encountering a lot of the day to day challenges that come with it, but the panorama for PNES is actually improving (I know it can feel for some like too slow or not at all where you live, but remember, there is hope).  And one of the key ways in which we continue moving forward in making more improvements for those living...

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