Psychological Non Epileptic Seizures
Northeast Regional Epilepsy Group

Psychogenic non-epileptic seizures: GC recommends that you listen to yourself

Freedom concept. Escaping from the cageThis blog post was written by a young woman who was diagnosed with psychogenic seizures (PNES) seven years ago.  She has coursed a hard yet enriching road that eventually helped her overcome her PNES.  Not only has she overcome the condition, she is now helping others to do the same.  we thank her for taking the time to write this message which she hopes will be helpful to many of you.

About 7 years ago I was diagnosed with psychogenic non-epileptic seizures (PNES).  After months of different doctors, hospitals and being incorrectly diagnosed with epilepsy it was a relief to finally put a name to what was wrong with me. It was the first time I had ever heard of PNES. However, when the neurologist explained the diagnosis to me I understood what was causing the seizures, but had no idea how to get out of the situation and cope with it.

At that time I was working at a big auditing firms as an accountant.  Until then my life was quite straightforward, some would say ‘perfect’. The fact that I made a success of everything that school had to offer meant that I never got challenged to think what it is was that I was good at and wanted out of life. The recognition that I received from significant others shaped a big part of my self-worth and I always wanted to please them.Since high school I had always had an interest in people and psychology, but when the time came that I had to choose a field of study I decided on accounting.  The reason for this was that I was a people pleaser. I felt that people expected of me to study accounting and be a successful businesswoman. I was so afraid of disappointing them.

After intense psychotherapy I realised that I was living someone else’s life. I decided to go and study psychology and the seizures decreased until they finally stopped. It’s been 6 years since then and I’m still healthy.  Three of the most valuable lessons that I learned from my PNES were that you must stop looking at the past and punishing yourself for the decisions you made, but know that you did what you thought was best for you at that time to survive. Secondly I learned that you must make your own choices and not let others choose for you. Lastly I learned that only you know what is best for yourself and what makes you happy. You have to listen to your ‘inner voice’. However, doing what makes you happy and staying true to yourself is not easy, but it’s possible. You are stronger than you think.

3 Responses to “Psychogenic non-epileptic seizures: GC recommends that you listen to yourself”

  1. Alison says:

    Hi,what an uplifting story.I can agree with everything you have said.I too have NEAD and am slowly understanding my triggers and how it affects me.Having only being diagnosed last year I feel it is a long journey but I will get there in the end.Thank you

  2. T says:

    My 21 year daughter has had MANY traumatic events in her child hood/adulthood. These traumatic events have gone unaddressed until approx 6 months ago. She is seeking therapy thorough a well renowned center that deals with trauma. As a result of this therapy, AND her own schooling (SouthWest Inst of Healing Arts) with a required course on hypno therapy–she is suffering Psychogenic Non Epileptic Seizures with her first seizure being 12/9/2013. My daughter is the most optimistic, loving, giving individual. She realizes the importance of THINKING POSITIVE, HAVING POSITIVE ENERGY, PRACTICING OPTIMISM, and BEING GRATEFUL. She speaks out loud all that she is grateful for and speaks out loud of positive affirmations. “I AM HAPPY-I AM BLESSED- I AM STRONG- I HAVE GIFTS TO OFFER”. Louis Hay is her mentor as is all spiritual, optimistic, healing leaders. She is studying and graduates being a Life Coach who wants to make difference in the lives of others. My question to you is even with such a positive, optimistic and grateful attitude and PRAYER—-how does one remain this way when they are STRICKEN with such a debilitating disorder? She can not work, she can not be productive or do what she feels God has called her to do–that is to-heal people. How can she do God’s work if she is incapacitated her self? There is no medicine FOR these seizures—only trauma counseling called EMDR (which can contribute to them) and meds to treat accompanying issues (depression, anxiety). I feel like I am watching my own child wither away even though she refuses to succumb to these seizures. She is a fighter indeed! This is a young woman that WANTS to be productive–WANTS to make a difference-WANTS the very best life has to offer -and WANTS to be an inspiration and a positive influence in the world. PLEASE HELP ME help her to continue to be strong AND FIND ANSWERS so that she can attain her dreams.

    Teryl Hodge
    16160 Kenneth rd
    Stilwell,Ks 66085
    teryl@kc.rr.com
    913-681-6675

  3. Mahmud says:

    Hello dear, thank you for your valuable post. I agree with you. I get many information from your blog. Many many thanks to you.

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